50 Questions: Those Medicine Commercials

This is #46 in the 50 Questions Series.

46. Create a post asking for advice on something that’s troubling you.

It’s not something that is bothering me but it something my friend and I were talking about the other day. We would like to hear your ideas on it.

Java and I were talking about medicines that we take because both of us have upcoming doctors appointments. We were comparing notes. I take Benadryl and it makes me tired. She takes Benadryl and she is wired for sound. We were comparing differences, discussing what medicines we take for what problems, and comparing symptoms to conditions we both have.

Then, as we usually do, we changed subjects and started talking about commercials. This lead us into medicine commercials. You know the ones… “Do you feel nauseous? You need Heavehalt. Talk to your doctor today!”

SQUIRREL ALERT!

A.D.D. is easy as 1-2- OH EM GEE! A SQUIRREL!
SQUIRREL ALERT! Hi, Sparky!

Okay, while this is still related to the post, this just reminded me of a YouTube video by IISuperwomanII. She is hilarious. I love her videos!

She did one on different types of commercials and the first one is about medical commercials and how what they are telling you does not match what you are being told in the commercial. 

You can watch it here. Enjoy!

Side Effects Listed in Commercials

We were discussing the side effects that they mention, that you may have, before they suggest talking to your doctor about Insertamedicinehere. The issues we have with these commercials are 

  1. They are trying to sell medicine. That should be your doctors thing. Not a company. But I will skip that for a minute.
  2. The symptoms are usually vague when they mention them. Back pain, nausea, sudden urge to urinate, feeling tired, etc. Who hasn’t had those?
  3. They tell you to talk to your doctor to see if Medicineyoudontneed is right for you right after listing all these vague symptoms.

So here is what we are wondering. For people with chronic health problems, how would you know when to talk to your doctor or if it’s just a part of [insert medical condition here].

For example, if a medicine says, “Do you have muscle aches and pains?” That goes with severe vitamin D deficiency and Fibromyalgia. Sometimes it goes with epilepsy too.

The Question: When do you talk to your doctor?

How would I know my muscle aches and pains are normal Fibromyalgia pains and when it’s a pain I need to see my doctor for?

If you have chronic health issues, at what point should you go to your doctor?

Since living here, I have learned not to go to the doctor for anything. If I can handle it at home, I am not going. I’ve taken epi-pens to the leg, downed some Benadryl and Ranitidine, and hoped it kicked in fast enough rather than go to the ER here.

I will deal with pain at home. It has to actually make my life a living hell before I will go to the doctor. 

It’s not that I don’t trust the doctor I see now. I do! But from past negative experiences with the medical care here, I am very leery of going to an appointment to ask about anything. It’s that psychological abuse that Dr Vindictive put me through. I recognise this. I acknowledge it. Still doesn’t make it any easier to go to a doctor when I should.

Which is why Java and I thought this would be a great question to ask.

At what point do you go to the doctor about your symptoms?

What do you think of those commercials?

 

The Sleep Study Update…

Sorry I haven’t updated about the sleep study yet. Staying awake so long actually threw me off my schedule pretty bad. I keep thinking it is Wednesday because I lost a day somewhere. I’ll pick up on Wordless Wednesday next week.

Anyway, I did get to do the sleep study this time. When I got there, I had a one hour nap (maybe) in 28 hours somewhere in the afternoon. I couldn’t stay awake anymore. I thought I would sleep well but by the time I got to the hospital, I was wide awake and wired for sound. Continue reading

Questions From This Week … Answered!

I get questioned throughout the week about my blog and posts. My squirrel, Sparky, working in the background suggested that I make a post each week of the questions people asked. Her thinking was, if one person asked you, other people may want to know too. Good idea!

How is this different from MAILBAG! posts? These weren’t sent through email, comments, or any other social media site. These are questions my friends and family members asked in person, through text messages, or in chat.

Question 1: Did you reschedule the sleep study?

Continue reading

Mailbag! Fatigue, Sleep, and AWESOME!

What? Cabinet Peaks Medical Center gets a good review? Even though my appointment was cancelled? Am I okay? YOU BET! I even have a little award for them at the end of the post.

Continue reading

Mushrooms and Vitamin D

Since I am severely Vitamin D deficient (mine was 6 the last they checked) I have tried vitamin D supplements. All of them make me sick.

  • I feel like I have the flu
  • My skin feels like it is on fire
  • My skin hurts
  • My body aches
  • My bones hurt!
  • My eyes feel like sunshine is coming out of my eyes.
  • I am so exhausted that I can’t stay upright.

But since we are left with “try mushrooms and lichen” or “get shots and dialysis”, I decided to suck it up and try my damnedest to suffer through some mushrooms charged with Vitamin D.

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I did a lot of research on this and found that if you take mushrooms (Portobello and shiitake are what I am going for) and lay them upside down in the sunshine (stems removed) they create Vitamin D. Then you eat them and VOILA Vitamin D supplement that is as natural as I can get.

One problem. Every time I eat the mushrooms, I feel like crap. Not as bad as the other supplements but I still feel ill. Compared to above:

  • My skin doesn’t burn (that’s a positive)
  • My skin doesn’t feel like it’s on fire.
  • It does itch though but very mildly.
  • My body aches but not as severe.
  • My bones do not hurt.
  • I am still exhausted but not all the time. I comes and goes in waves.
  • My eyes feel puffy but not bad.

BUT it does have a few other side effects.

  • My stomach and abdomen does this weird flip-flop thing where it feels like there are spasms running through them, like I am getting kicked in the gut, then I am hit with MASSIVE waves of nausea and dry heaving.
  • I get a fever. Usually mild. The worse was 102.4 or something close.
  • I feel like I am freezing to death.

I am debating now how much of this I can tolerate. I am still doing it a couple of times a week (because I can’t feel like shit 24/7). The symptoms last about a day. I am planning my mushroom doses with when I need to be active and marijuana is helping with most of the symptoms.

If this doesn’t bring my Vitamin D up into a better range, I am seriously going to have a sobbing break down… snot bubbles and all!

Just thought I would update since today was a mushroom day and I wasn’t able to post earlier because of it. So, about two days a week, I may skip posting. I am planning for that.

I am home! And exhausted! And I need to Ramble Post!

We made it home just fine. I am still exhausted from the heat and Benadryl. I have not been on that much Benadryl in a long time. I woke up each morning and took 50 mg of Benadryl. Then every drink I had (Pepsi, water, coffee, etc) had a 50 mg Benadryl mixed into it. And there were still days that my tongue and throat felt like it was swelling. My ankles and feet swelled from the heat so much that I could not put my crocs on. Don’t judge me. I have them for when my feet swell. Only I ended up wearing slipper socks because my feet wear so swollen my oversize crocs were too tight.

I spent most of the time in the apartment either crocheting, browsing Facebook, or playing Minecraft… and becoming seriously depressed. I spent a lot of time choking down tears and reminding myself that it was temporary and I would be going home soon. I have to say, the semi-colon project popped into my head a lot. I wasn’t suicidal! I want to stress that. Sometimes the semi-colon just reminds me that I can keep going because I have done it again and again… and when it looks horrible, it will get better.

Which brings me to this week. I am coming down off the Benadryl. I lost 3 pounds since I got home two days ago. I feel better pain wise and swelling wise but I still hurt enough that I am still choking down tears… even on Marijuana. I think I need to take extra doses. If I had the money, I would do that.

Today I have am appointment about my swelling and I am going to talk to my doctor about how I can’t get up for too long without my ankles swelling. I’ll see how it goes.

Wednesday I will be a bundle of nerves. I have my disability hearing. I just wonder how much Dr Vindictive screwed me over with his calling all my doctors, lying, and labeling me with a mental illness I don’t have.  I keep hearing, “Oh you will get it this time! No problem!” But I am really disheartened and I have a seriously hard time believing it. If I don’t get disability, well, I will cry for about a week and then I’ll get my big girl panties on and… plan on homelessness. I do have a year or two before it will become a reality. I will have to file bankruptcy. I would say I would be hitting rock bottom but I am already there. I’ll just have to start decorating the bottomless pit and call it “no hope/ no job/ and no one will hire me”.

So, either the blog will start directing to more happy things that make me smile or I’ll start posting my preparedness of getting my van ready to live in. I am actually looking forward to it. No sarcasm. I have worked myself into excitement over the idea of living in a smaller space that will be easier to keep up with and having my own smaller home.

On Thursday I have therapy. I am going to be a bundle of nerves. This month has been hell on me. I have no idea of my future and I do not like asking for help.

I am still trying to think of things I can do to make money. Serious things. I am crocheting but if I made a scarf, I would have to sell it for like $50 to make any money at it. None of them really made it affordable for the buyer and NO ONE here wants to pay for your time, much less the materials. So I figured the prices at minimum wage ($8.05 here), $10 an hour, and $15 an hour. If it’s $8.05 then I will add in the material prices (of the yarn, I already have needles). At the other two, I will just eat the cost of materials.

A dishcloth took me an hour to make. I don’t think any dishcloth is worth $8.05 or $10 or $15. I may be undervaluing myself or my skill but would you buy a dishcloth for $8?

A scarf took me about four hours to make. Would you pay $32 for a scarf? Or $40? Or $60?

I decided to make a fun little lap blanket. It has taken me DAYS to make. By the time I am finished, my price just for my time will be something like $320 or $400 or $600. No one is going to buy a lap blanket for that price. Or would they?

I am just feeling like a failure. Well, not really a failure because I know I have talent and I do think I do a good job at things but nothing I do will realistically make me enough money to actually pay my bills.

I get really excited once in a while about something but it quickly fades as I realize the amount of opposition I am up against. Unless I charge like $3 an hour, I am not going to sell anything. I would have to live in my van anyway.

And if I don’t get disability, I am going to feel like a complete failure. I tried finding a job. But no one will hire me (I wouldn’t hire me). I tried applying at three places I know hire disabled people. They won’t even hire me because I am too much of a liability.

I tried pep talks like, “You can do it! You can find SOMETHING you can do for work… Hell, even your aunt with Downs Syndrome has a job.” Then it dawned on me. Even my relatives with disabilities have jobs and I am still over here like, “Hey can I borrow another $5? I ran out of soap and toilet paper.”

I am depressed. I’ll be totally honest. I cry a lot these days. My eyes burn from the tears now. But I keep thinking it will get better. The only thing is, it doesn’t get better. Talent is nice and all but it doesn’t pay the bills. Sure, I can make cool things but I wouldn’t make enough money to keep a cheap apartment much less pay the bills.

So… Wednesday either I can calm down and relax or I have a good breakdown and then plan to be homeless. Either way, I am due for a really good cry with snot bubbles and all.

Cabinet Peaks Medical Center Resolution?

After weeks of digging for the reason I have a mental illness added to my chart; and I think we came to a solution.

Let me just clarify before I continue, I am still NOT going back to Cabinet Peaks Medical Center’s emergency room if I am conscious and coherent (and probably incoherent too).

Anywhoodles, I called and talked to the same guy, we’ll still call him George still. I explained that I had filed a complaint against Dr N before and I was still having an issue with him. He asked what had happened and I gave a quick run down of what happened before and the lack of a response that I got as a “resolution”. Since I can’t find it posted on my blog, I will give you all a quick run down. Ready?

The FUBAR Situation

On 23 March 2015 I went to the emergency room for seizures that would start, stop, and then come back within minutes. I was hesitant to go to the ER because of stories I have heard about partial seizures being non-treated here. But after calling Nurse First and still feeling very off, I went into the ER.

I saw Dr N and I it was like being in the Twilight Zone. He refused to hear what I was saying, they ignored the low O2 alarm that occasionally went off because my oxygen would drop down for a few seconds then come back up (lowest my son saw was 50-something and the lowest I saw was 67), and then he checked to see how kidney function was doing.

So, I don’t know how he connected kidney function with seizures… I wouldn’t have thought of checking that. But he did and my kidneys are fine. Not that I thought there was an issue. He came in at one point and mentioned my “dissociating” but I wasn’t dissociating! It was like, no matter what I said he would not hear what I was saying. He was so stuck on “I don’t understand these symptoms you are having” that he could not hear me say, “I AM HAVING SEIZURES THAT KEEP COMING BACK!” Even in my chart he put that I came in “for an unusual sensation that is hard to describe.” WTF? I am pretty sure this guy is either on drugs or perma-fried because it was completely surreal trying to get him to listen. It was like talking to someone about cooking who was only interested in discussing auto mechanics.

Stoner-Dog

And when I snapped and said “I am having seizures” again and he said “well, I don’t know how to treat those.” WTF? How are you an emergency room doctor and you don’t know how to treat seizures? How? That should be like emergency room knowledge 101.

mj4r2

He went back to bed (charted) and the nurses released me because I can sit at home and be ignored just as well as I can be ignored sitting in the hospital. I do need to throw in here that Nurse J (the guy) was great and Nurse J (the woman) was the most attentive I have ever seen a nurse be at this hospital. In hindsight, I was impressed. During the visit though, I felt so off and randomly out of it that I could barely think (or read… how embarrassing. I swear Ms Nurse J, I can read better than that!)

The Next Day: All Hell Breaks Loose

As I was resting the next day, I get a phone call. It was Dr N calling to tell me he couldn’t figure out what my symptoms were from. I was a little blown away about the call because he wasn’t calling to see if I was okay, I would have been fine with that. I have had other doctors call to make sure I was okay. I am totally okay with them making sure I didn’t go home and immediately die. But he wasn’t calling to check on me at all. He was calling to tell me he didn’t know what those symptoms were, oh and he called my doctors and told them I am not taking my medication (when I was) and had them change my medication to something they all agreed I should be on (that I am against for religious reasons). I was so fucking livid.

Then he tries to set up an EEG and called me about that. He was like “I was going to have them schedule you for today but they had two openings (or maybe it was one?) and they said you would have to call.” WTF? So now you make my appointments for me too? Oh hell no! We aren’t doing this. You are not my health care advocate. You couldn’t even treat me for seizures and now you take over my health care?

And then he calls my psychologist and tells her I wasn’t taking my medication and how he just didn’t understand what was going on with me and on and on.

o0fyg

I finally went to the hospital and filed a complaint after I finally lost it and snapped at my CMA on the phone. I am so SO sorry T*. I still can’t have my house phone ring without going into a full blown panic attack. The thought of the hospital makes me so mad.

And now to the bullshit

After that complaint, I got the lamest letter that says, basically… paraphrasing here… “We’re sorry for your shitty experience but he doesn’t practice retaliation. He feels really bad about it though.” Out of the whole thing that is what they got? Really? No reprimand? At the least a little write up with a “You can’t act like a patient’s advocate and lie to their doctor” or anything like that? … Fine. Permanently lost me as a patient.

Then this happened. Read about it here. I mean, you couldn’t have asked for a worse experience. Turns out, I linked it back to Dr N. He diagnosed me with a mental illness without telling me or my psychologist or my doctor or anyone for that matter.

And back to the phone call

So I tell George that we tracked it back to Dr N. We had to audit my damned chart in order to find it but, three weeks later, after digging through charts in two hospitals, a clinic, and a specialist office… after having so many searching with me that they probably thought I really was crazy, we found it. He added it on the 24th of March at 0532. They told me that to have it removed, I would have to talk to Dr N about it.

Not wanting to encourage him to harass me or call my house or have any other way of wrecking havoc on my life, I decided to call “George” and explain it to him. He said he wasn’t sure if he was working that day or not. Wait. What? You are the head of the emergency department and you don’t know who is working? Well… okay…

o15lv

I gave him the run down of what happened. He tried to defend Dr N. So I kept explaining that this is causing issues with my care with other doctors and I was told to talk to Dr N and I do not want to and asked if he would talk to him. He tried to defend him again and then started saying “He will probably say that he really thinks you have this.” or something to that effect. He even had the balls to tell me that Dr N doesn’t HAVE to tell anyone that he diagnosed me with that. (BULLSHIT! It is my patient’s right to know my diagnosis and not have to fucking spend weeks digging through records to find out about it.)

And that is when I decided to screw being nice and lay it out on the line for him, being totally real…

I told him, “Okay, look! I am about to call the state on you, your hospital, the doctor and everyone involved. I don’t care what you THINK he might say. I want to know WHY he diagnosed me with a mental illness when I don’t even meet the criteria for it.” or something to that affect. I am pretty sure I cussed at that point because I was quite pissed.

I didn’t call asking for someone to be Dr N’s right hand man and stick up for him. I wanted answers and they weren’t being given to me. At this point, I don’t give a rats ass what George thinks, I want to know why Dr N diagnosed me. Period. And why he didn’t tell anyone about the diagnosis. Period. That is what I want to know. I don’t want to hear excuses. I want answers.

So he says he’ll get right on that and will call me right back.

Another lame excuse, or “Do I look stupid to you?”

He calls me back and says that Dr N did not enter it into my chart. The EHR auto-populated my chart with that diagnosis and it happened to other people too. He then said he removed it from my chart or record, I can’t remember the wording. And was so sorry that happened. I call bullshit.

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So I explained that while that was nice and all, it doesn’t solve my issue with my specialists who now think I am malingering because I have a “mental illness”. He said he would call them and explain what happened. I got the number and called him back with that.

He then calls again and said that MB wasn’t in the office but he would be back Monday. Has a sticky note at eye level and all and will make sure it is done. And then he concluded with, “I just want you to know we are taking this very very seriously.” Well it’s about damned time.

So I told him Thank you and that I appreciated that, because I really do.

And now…

And now, I will be checking records in about a week. Let me find that anywhere in my records and I will be contacting the state and possibly a lawyer.

Lesson learned. NEVER EVER go to Cabinet Peaks Medical Center’s Emergency Room. They do not respect you enough to tell you a diagnosis which is your RIGHT to know and they defend retaliatory doctors. That is my opinion right there.

What else would they not tell me?

And the wait begins.

But I am still angry because it negatively effected my health care with other doctors so far. One misdiagnosis, even just for retaliation, means I am now stigmatized.

betrayal quotes (1)