Java Asks “How Long Do You Rest Between Cleaning?”

I have a question … Let’s pretend that you are having a pretty good day not the best but pretty good. How long do you rest in between chores?

I got this text the other day and thought it would be better to go into details on the blog. I answered in text but it’s a shorter answer. Here it is:

Usually I work or clean for 10-30 minutes then rest for about an hour. Not even kidding. On a good day, I can rest for about 30 minutes.

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My longer answer is this…

When I was younger, I had this cleaning routine. My house looked GOOD! I was on top of the world. Now, not so much. I pick my battles with the house. I have levels of cleaning depending on how bad I hurt.

The Lowest Level: High Pain Day

On these days, I have a few lists I follow. Wake up routine, 420 List, and Before You Sleep.

My wake up routine is pretty simple now. I can do it on most of my horrible days. This is done after I go pee and take Jackjack outside to pee. This is done between the time I get up and 4:20 PM (the next list).

  • Get up!
    • Fold your blanket. I sleep in my recliner so I don’t make my bed. This is what I do instead. It becomes the dog/cat bed during the day. At night, they all sleep with me.
    • Feed Pets
    • Water Bowls
    • Scoop Poop (litter box). I’ll be honest, I do slack on this one. I try but some days my shoulders just kill me (have ever since Physical Therapy. I’ve never been the same).
    • Computer stuff (whatever I need to do that day)
  • Bathroom
    • Run a toilet brush around the toilet (usually done while I am in there)
    • Spray the tub if it needs it. (This literally takes one minute)
    • Wipe up your mess around the sink.
    • Empty the trash if needed. (I don’t empty the kitchen trash can though, it’s way to heavy for me.)
  • Kitchen
    • Did you eat something? (I have no appetite. I forget to eat)
    • Start dinner thawing or start it in the crock-pot. Plan what you are going to eat today.
    • Get someone to unload the dishwasher (I’ll explain later)
    • Load dishwasher.
    • Have someone start the dishwasher. (I’ll explain later)
  • Clothes
    • Did you change clothes? (Sometimes the answer is “Nope.” *checks box*)
    • Gather dirty laundry (on laundry day)
    • Look for dirty dishes and take them to the sink.
  • While you can still bend, tidy up the floor. Do it while you can! It will drive you nuts later!
  • Uncheck the 420 and before you sleep list.

420 Pain List

This list is all about pain management.

  • Have you taken your CBD oil?
  • Vape if you need it. 1 puff, wait 5 minutes. Repeat as needed.
  • Have coffee. How’s the headache?
  • Check the counter and sink.
  • Eat something.
  • Gather dishes and laundry. (This keeps me up and moving so I can’t just sit there and wallow in my own misery)

Before Bed or Sleep

This can be done from 420 on. It doesn’t matter when I do it, as long as it gets done.

  • Rotate dishes (someone empties, I load, someone starts)
  • Clean up the sink.
  • Clean the counters.
  • Set coffee pot
  • Set alarms
  • Scoop Poop
  • One Spot. (Put up shoes, purse, backpack, leash, coat, etc. Have it all in one spot so if you have to leave it is right there.)
  • Plan your meal for tomorrow (This is usually a mental thing. I just think, “bean burritos sound good” and that’s it.)
  • Uncheck the other lists
  • Go for a walk with Jackjack.

A note about the dishwasher.

Where I put (I’ll explain later) next to the dishwasher… this is the explaining part. I can either unload, load, OR start the dishwasher. I can’t do all three or I will be chair bound for days (or a week) from the pain. So, I have one kid unload, I load, and the other kid starts the dishwasher.

If we have a couple loads to catch up on, then the dishwasher stays parked in the kitchen (it’s a rolling dishwasher) and I will pile all the clean dishes on the deep freezer, load it again, and start it. Later, the kid that unloads can go through and put the pile of dishes away.

How I get shit done!

I’ll be honest, lately I haven’t done so well on this. But I am trying. Mostly, struggling. But still trying.

I do the basics first. That’s the three lists above. If that is all I can do that day, then so be it. That is all that gets done. If I can do more, then I use Motivated Moms to get me going and keep me motivated.

Frankly, four years of chronic pain gets to me sometimes. I don’t have pain pills to help the agony. I have marijuana and that is it. Some days, I push that to it’s limits.

I can’t clean like I could before. So using motivated moms makes me feel like less of a piece of crap. I feel like a failure because I struggle with my house. Having a check list that I can see that I am doing these chores and they got done… and it was EXTRA from my lists, that makes me not criticize myself so hard.

The rest breaks

I take rest breaks every 15 to 30 minutes, depends on how bad I am hurting. And then I stay put until the pain dies down some. That could take 30 minutes or it could take two hours. Depends on how horrible the pain is. 

If my pain is just out of control that day, I smoke and then take a nap. Some days, my kids know that I am going to be stuck in my chair all day. It happens. 

What is your cleaning like? Do you have to take breaks?

50 Questions: Those Medicine Commercials

This is #46 in the 50 Questions Series.

46. Create a post asking for advice on something that’s troubling you.

It’s not something that is bothering me but it something my friend and I were talking about the other day. We would like to hear your ideas on it.

Java and I were talking about medicines that we take because both of us have upcoming doctors appointments. We were comparing notes. I take Benadryl and it makes me tired. She takes Benadryl and she is wired for sound. We were comparing differences, discussing what medicines we take for what problems, and comparing symptoms to conditions we both have.

Then, as we usually do, we changed subjects and started talking about commercials. This lead us into medicine commercials. You know the ones… “Do you feel nauseous? You need Heavehalt. Talk to your doctor today!”

SQUIRREL ALERT!

A.D.D. is easy as 1-2- OH EM GEE! A SQUIRREL!
SQUIRREL ALERT! Hi, Sparky!

Okay, while this is still related to the post, this just reminded me of a YouTube video by IISuperwomanII. She is hilarious. I love her videos!

She did one on different types of commercials and the first one is about medical commercials and how what they are telling you does not match what you are being told in the commercial. 

You can watch it here. Enjoy!

Side Effects Listed in Commercials

We were discussing the side effects that they mention, that you may have, before they suggest talking to your doctor about Insertamedicinehere. The issues we have with these commercials are 

  1. They are trying to sell medicine. That should be your doctors thing. Not a company. But I will skip that for a minute.
  2. The symptoms are usually vague when they mention them. Back pain, nausea, sudden urge to urinate, feeling tired, etc. Who hasn’t had those?
  3. They tell you to talk to your doctor to see if Medicineyoudontneed is right for you right after listing all these vague symptoms.

So here is what we are wondering. For people with chronic health problems, how would you know when to talk to your doctor or if it’s just a part of [insert medical condition here].

For example, if a medicine says, “Do you have muscle aches and pains?” That goes with severe vitamin D deficiency and Fibromyalgia. Sometimes it goes with epilepsy too.

The Question: When do you talk to your doctor?

How would I know my muscle aches and pains are normal Fibromyalgia pains and when it’s a pain I need to see my doctor for?

If you have chronic health issues, at what point should you go to your doctor?

Since living here, I have learned not to go to the doctor for anything. If I can handle it at home, I am not going. I’ve taken epi-pens to the leg, downed some Benadryl and Ranitidine, and hoped it kicked in fast enough rather than go to the ER here.

I will deal with pain at home. It has to actually make my life a living hell before I will go to the doctor. 

It’s not that I don’t trust the doctor I see now. I do! But from past negative experiences with the medical care here, I am very leery of going to an appointment to ask about anything. It’s that psychological abuse that Dr Vindictive put me through. I recognise this. I acknowledge it. Still doesn’t make it any easier to go to a doctor when I should.

Which is why Java and I thought this would be a great question to ask.

At what point do you go to the doctor about your symptoms?

What do you think of those commercials?

 

The Sleep Study Update…

Sorry I haven’t updated about the sleep study yet. Staying awake so long actually threw me off my schedule pretty bad. I keep thinking it is Wednesday because I lost a day somewhere. I’ll pick up on Wordless Wednesday next week.

Anyway, I did get to do the sleep study this time. When I got there, I had a one hour nap (maybe) in 28 hours somewhere in the afternoon. I couldn’t stay awake anymore. I thought I would sleep well but by the time I got to the hospital, I was wide awake and wired for sound. Continue reading

Mushrooms and Vitamin D

Since I am severely Vitamin D deficient (mine was 6 the last they checked) I have tried vitamin D supplements. All of them make me sick.

  • I feel like I have the flu
  • My skin feels like it is on fire
  • My skin hurts
  • My body aches
  • My bones hurt!
  • My eyes feel like sunshine is coming out of my eyes.
  • I am so exhausted that I can’t stay upright.

But since we are left with “try mushrooms and lichen” or “get shots and dialysis”, I decided to suck it up and try my damnedest to suffer through some mushrooms charged with Vitamin D.

Mushrooms and Vitamin D.jpg

I did a lot of research on this and found that if you take mushrooms (Portobello and shiitake are what I am going for) and lay them upside down in the sunshine (stems removed) they create Vitamin D. Then you eat them and VOILA Vitamin D supplement that is as natural as I can get.

One problem. Every time I eat the mushrooms, I feel like crap. Not as bad as the other supplements but I still feel ill. Compared to above:

  • My skin doesn’t burn (that’s a positive)
  • My skin doesn’t feel like it’s on fire.
  • It does itch though but very mildly.
  • My body aches but not as severe.
  • My bones do not hurt.
  • I am still exhausted but not all the time. I comes and goes in waves.
  • My eyes feel puffy but not bad.

BUT it does have a few other side effects.

  • My stomach and abdomen does this weird flip-flop thing where it feels like there are spasms running through them, like I am getting kicked in the gut, then I am hit with MASSIVE waves of nausea and dry heaving.
  • I get a fever. Usually mild. The worse was 102.4 or something close.
  • I feel like I am freezing to death.

I am debating now how much of this I can tolerate. I am still doing it a couple of times a week (because I can’t feel like shit 24/7). The symptoms last about a day. I am planning my mushroom doses with when I need to be active and marijuana is helping with most of the symptoms.

If this doesn’t bring my Vitamin D up into a better range, I am seriously going to have a sobbing break down… snot bubbles and all!

Just thought I would update since today was a mushroom day and I wasn’t able to post earlier because of it. So, about two days a week, I may skip posting. I am planning for that.

The Pain was Worth it!

Yesterday I had my last speech therapy appointment in K-town. It was my last one and I am quite pleased with it. I learned that I remember better by association. When she gave me a list of words, if I could associate them with me I could remember them. Although yesterday I missed three, I am chalking that up to the heat and Benadryl. Last week I got 10 out of 10.

The other activities for remembering, I sucked at. One was just looking at the picture and trying to remember details. Then she would ask me about things in the picture. It went something like this:

JM: What was the picture about?

ME: A kitchen.

JM: Good.

ME: *Smiling all proud*

JM: What shelf were the canisters on?

ME: Oh, the top shelf! (Because my brother has similar shelves and it reminded me of his kitchen.)

JM: What was in the canisters on the shelf.

ME: *thinks* Coffee. I remember that one. Uh, I am not sure what the other ones were. I just really want some coffee LOL.

JM: *giggles* Flour and sugar. That’s okay. Next question, where was the clock?

ME: Wait. There was a clock? Seriously? Where?

JM: Yes, it was on the stove.

ME: Oooooh. *feeling dumb or unobservant*

JM: That’s okay a lot of people miss that one.

Oh sure… thanks for lying to make me feel better. LOL just kidding, they probably do. She showed me the picture afterwards so I could see the things I missed. I did okay on it. The next one was a bakery. I did meh on that one (because how often do I go to a bakery?) The pool picture I did pretty awesome but I grew up around pools and man did that bring back memories. After that, she switched to association because I do so much better with that. Last week I remembered 10 out of 10 words.

She said I am actually at the higher functioning stuff which made me feel better about myself. I did one sheet where if there was a box around the word, you read the color of the word. If there was no box then just read the word. Man, that was hard!

[redGreen <— These would both be “red”. They had green and blue also.

So, I may be forgetful, but now I have some tools for me to practice to help me remember stuff. Some stuff I remember with no problem. If they are number related, then I remember it easily. What time did Dr N add that diagnosis? 0532 on 24 March 2015. What did I have for lunch that day? I have no idea.

At least with this and the grouping exercise, I can work on remembering things and I don’t feel like a complete failure.

As a side note: yes, I realize that some of you will be able to figure out where these places are. I am not writing them out as K-town, L-town, etc to hide anything from you. I am just doing that because I like the sound of it. Also, I am writing a book where I am basing the layout of the camps on the real towns of Kalispell and Libby. (See, not trying to hide). Since I write here and in the book about the same times each day, it’s easier for me to write K-town instead of Kalispell or the name of the town for the book (which starts with K for now). I found myself writing Kalispell in the book and vice versa when I tried to write on here and in the book. Besides, K-town and L-town just sound nice to me.

And the pain was totally worth it!

So, yesterday, I did have a ride (THANK YOU, R*!) from L-town to K-town at 3:30 in the morning. Then I slept a little on and off. When I got up, I found out that the vehicle was unavailable for dropping off at the appointment. I had looked up the bus system down there the night before so I had a mini-backup plan. V* ended up dropping me off for my appointment (THANK YOU V*!) and I decided to use that time to hunt down that diagnosis on my medical record.

Went to my appointment, walked to the hospital’s medical records, walked over to the HIT department, and then back to medical records with HIT. I have to say, those two ladies were so nice! Everyone was so nice yesterday, but the HIT ladies were so super nice and helpful. Everyone should be like that! Back to the story, so I explained what I was looking for and they found it, had a print out (which I now have) that links the diagnosis to Dr N.

I found it interesting that we had such an issue finding it in my chart that we could only link it back to MB (from 04/06); but he put it in my chart from “old records”. How did he see it and we had to have someone spend an entire day searching for it because it wasn’t obviously in the chart? It almost feels like it was hidden in the chart (doubt that was purposely). Which begs the question… how did MB find it? Or did he actually talk to Dr N about it? Because I have to records he would have seen and it is NOT in there. I had two other people helping me search for it.

Anyway, now I have that. I went to the bus shelter and waited for the bus to Whitefish (sorry, no cute name for that one, it’s not in the book yet… YET). It was so hot outside I was feeling sick and itching like crazy. I had my sleeves on though and I stayed in shade when possible… so it’s not like I was in the sun on purpose. But ugh, I feeling miserable for a bit. I did take Benadryl, which made it really difficult to function but made my day better. Note to self: next time take your umbrella!

Train Station and Pictures

I sat at the Whitefish train station from 4:30 pm until the train got there. It was so neat listening to everyone talk about their travels. One couple has a rail pass and is hoping the trains and stopping every now and then for a day or two. I so want to do that! Another guy was going to see his girlfriend, who is pregnant. He was in K-town for a day. Another couple were going to visit Spokane for a fun weekend. There was a lady who was visiting her kids and was now leaving. Another guy works in one state but comes home every couple months. Then there was me. Had a doctor’s appointment. Needed a ride back home. I did walk to a health food store and grabbed some yogurt at one point.

The only thing I regret is that I forgot my camera! I snapped a few pictures on my phone though. They aren’t as great… but I will get to that later. Here are some pictures! Before you look at them, let me just say that I didn’t realize how bad my camera on my phone is until I actually took pictures with it. So sorry in advance.

Here is the train station outside area where we waited for the train.

mms_picture
Whitefish, Montana train station

Here is a BEAUTIFUL piano. I will have to get better pictures of it.

Elegant piano at Whitefish, Montana train station.
Elegant piano at Whitefish, Montana train station.

And this is the scales in the station. They don’t use these anymore, they are just there for museum awesomeness. Although, one lady did stand on them and let her boyfriend weigh her. She said she gained 20 pounds on this trip. LOL

Whitefish, Montana train station scale.
Whitefish, Montana train station scale.

Back to the train, It was running behind because of two medical emergencies and a drunken disorderly. We left about 11:23 and made it back to L-town at 1:16 in the morning. I was on the upper level (I asked for lower but it wasn’t on the ticket).

Between all the walking in K-town around the hospital, the bus ride, sleeping on a bench (the Benadryl kicked in), and riding a train… all while carrying my backpack… today my back is killing me! I probably won’t do much the rest of the day. I am resting so I don’t seriously hurt myself. That is where I got the post title from. It was a LONG day! It was tiring. The Benadryl kicked my ass. I am having horrible abdominal cramps and diarrhea from the heat (I know… TMI). I cried this morning from the pain… but I have marijuana! I can get through this!

And now… the worth it part…

Because of this nice reminder that I have a way to not be in agonizing pain, I realized I can do more than I could before. So, next week I have an appointment for a gastric emptying study on Wednesday. I am going to get a ride to the hospital, get the test done, throw up (because I will have to eat food), and then wait for the bus again. This time, I am going to Whitefish with umbrella and Benadryl, and I am taking my camera with me too and a folding chair too.

I am totally going to make a day out of taking pictures and chilling in the shade (assuming it isn’t too hot). If it gets too hot, I can always go wander through a store or museum. Then I can ride the train back to L-town again. Only this time I am bringing a rolling thingy to put my backpack on. That is too much for me to carry! Lesson learned. And I am bringing a folding chair because there were a few times I really needed to sit down but there wasn’t a good place to sit, or there wasn’t a place with a back rest … which I am sure didn’t help with the back pain.

And hopefully a folding chair will make it to where I don’t have to bring a rolling walker. I hate that thing and love it all at the same time. I haven’t needed to use it except when they had me stop marijuana for 10 days (and I lasted four). Before that, I stopped using it about two weeks into using marijuana. the swelling in my back had gone down and I could actually feel my legs better (which was good and bad LOL) and they stopped giving out on me. If I can avoid using it again, I totally will! I hated using it. It was embarrassing and I felt like less of a person.

Mentally, I feel so much better for being out yesterday and seeing people and getting to see places and I feel like I traveled (which I ABSOLUTELY miss the most!) If I had money, I would totally hop a train to somewhere and go explore and come back since I can’t drive anymore. But this makes getting out a lot more realistic and makes me feel less trapped. Trapped? No… stranded? no… there is a word. I can’t find it.

Update: HOMEBOUND! Thank you, Lakewolf! That is the word I was looking for!

One thing I will change though, I want a lower level seat! climbing stairs up is okay but slow. Going down them about kills my knees, especially after a day of walking around for any reason. I will still need a day (or two) to recover but this is so worth it. Just to get out and do something fun is what I needed.

I know this was long, but I feel so rejuvenated. I won’t be able to do this often but at least it is something to look forward to.

Neurologist Appointment and Medical Marijuana

Not looking forward to the next week and a half. Went to my neurologist yesterday. I am not really impressed this time. Never had a doctor roll her eyes at my son while he was talking to her. And she seemed short and rude with us. Just Cabinet Peaks bullshit trickling down to my other doctors? Or maybe she had a bad day?

I mentioned not wanting to be on man-made medications because they cause me so many negative side effects. She got real snotty and said “Everything has side effects, even herbs.” When I explained that I don’t have side effects to herbs though, she shot back “But everything has side effects. You can look up side effects of marijuana and get a list of side effects.” She was a real bitch.

Let’s see… Here is a review of the meds.

I was always so nauseous from the pain that I had to take Zofran. I couldn’t eat because I hurt so bad and nauseousness was too much that I had no appetite. The doc gave me Zofran for 3 times a day but medicaid will only pay for 15 pills. I couldn’t get the rest filled. So I got to pick which meal I wanted to eat every other day. And I could only eat a little bit or I would throw up.

Cyclobenzaprine: On it because my muscles were always so tense that I hurt like crazy. I walked like a 70 year old. The joints in my body did not want to bend correctly (hence, the walker) and my muscles BURNED like they were on fire ALL. THE. TIME. Cyclobenzaprine made me sleep. I thought it helped loosen my muscles and I slept so much on it that I felt like I got sleep. I was on this so long it stopped doing anything except making me sleep.

Clonidine (for anxiety): I slept. A LOT. I also had diarrhea of the mouth. If a thought popped into my head, it fell out my mouth. I turned into a bitch too. I would be fine one minute and then just snap at everyone the next minute (and again, I am SO SORRY). I felt drugged. My heart would race randomly and flutter toward the end. I still have palpitations sometimes.

Gabapentin: While it helped take the edge off the pain, still could not do anything. Made me sleep 2/3 of the time every day. Literally, I slept most of my days away. And I was still like I was before: I could not bend over to pick anything up. I could not cook. I had trouble dressing myself. I had trouble showering. I could not walk to the store or go anywhere without that damned walker unless I planned it right. And by that I mean, do not do anything at all the day before or that day. And that only worked if I wasn’t walking there. Can we say weight gain!? I am still trying to lose the weight. I gained 50 pounds! I can’t fit into my clothes anymore. When they increased the dose, I would take a dose, sleep until the next dose, take that dose, sleep until the next dose, etc. So they lowered it back down and tried other meds with it.

Then they added Keppra for me to try. I was apathetic. I did not care. I would have been suicidal but my give-a-damn had busted. If a truck ran me over, I just didn’t care. I didn’t want to throw myself in front of one though because that took effort. I just sat in my chair not caring. It very much reminded me of Wellbutrin. Nothing made me happy. There was no joy, no happiness, no love. I felt nothing. Just a huge gaping void in my chest where my heart used to be. I cared so little that I could not make myself call the doctor to let them know something was wrong. I did have a moment of clarity and vowed not to take it but it still took me a week to call the doctor because I still did not care.

Then they tried Lamictal. I asked about the “Lamictal rash” and everyone assured me that it was so rare that I did not have to worry about it. By day 3 (I think) my skin hurt so bad I could not be touched. It felt like I had a massive sunburn. I had a pretty rash and little itty bitty blisters across my back and mentally I was a wreck from the pain. It hurt so bad I wanted to die. (figuratively, but not suicidal)

Then they put me on Topamax, which my friends online lovingly called Dopamax. Hahaha. Wow! That was one bad acid trip. I locked myself in my apartment an could not make myself leave. I became paranoid and thought that everyone was cohorting against me. I felt like Alice in Wonderland. Things that were across the room looked like they were a mile away and anything with in arms reach looked like it was 2 inches from my face. At times I felt like my whole body filled my living room and I was HUGE and other times I felt like I was a tiny little kid sitting in a gigantic chamber. I got obsessed with doing everything in a certain way. I couldn’t turn off a light without a ritual that went with it. And I was terrified to call the doctor because I thought they would think I wasn’t trying. I look back now and I am horrified at how I was.

Enter medical marijuana (MMJ).

No more clonidine. I don’t need it. MMJ helps my anxiety just fine. Actually better than clonidine did.

No more Zofran. MMJ helps my nauseousness. It also helps my appetite so I am eating more than I did before.

No more Cyclobenzaprine. My muscles relaxed. They didn’t loosen, they relaxed. They aren’t tense anymore. I can bend again! I can touch the floor!

No more Gabapentin. MMJ helps with the pain. I do not need to keep taking something that just takes the edge off the pain because MMJ helps totally with the pain. No more searing joint pain, no more electric shock feeling running through my legs, no more extreme ripping pains in my back. It took my pain and made it almost gone. I’ll take a level 2 pain over level 7 pain pain ANY DAY!

I can move again. I can walk without my walker all the time. Not just when I am not dying in pain. I can stand up for a little bit. I can clean house for about 30 minutes at a time. I still can not lift a lot but I can still stand and clean! I can cook a small meal again! I am independent again!

Other good side effects:

My angioedema attacks are fewer. My allergies are calmer.

My joints don’t kill me. I still feel like my bones are grinding together in my lower back but the pain is so much less that it barely bothers me.

AND, something I do not talk about a lot, I can feel my crotch again. No more accidentally peeing myself because I can’t tell when I have to pee until it’s too late (as in, as it comes out). I can tell when I have to pee WAY before it’s critical. I stopped retaining urine. No catheters in FIVE MONTHS!

I can walk to the store and back WITHOUT planning and WITHOUT a walker. I am walking like a 39 year old again.

I feel happy again. I have joy and purpose in my life again. I got a sewing machine from my ex (Thank you Mendel) so I can make clothes and bags to sell. I spent the last week or so relearning the sewing machine, practicing stitches, and refreshing all my skills. I still have to sit down while working, but I CAN DO IT! I couldn’t do this before.

I don’t feel like I am going to freak out and cry on a daily basis. People come around again. And for the first time in YEARS, I actually WANT to go out and do things. I WANT to be around people again. You have no idea how great that feels.

For the first time in a long time, I WANT to listen to music. Noise doesn’t make me hurt. It’s not too much stimulation for me.

It also has helped my seizures. I went from having them all the time to maybe 2 or 3 a week. I’ll take that!

I sleep about 8 hours a day now instead of 16-24 hours a day. Except for the occasional sleep attack which lasts a couple days now instead of weeks to a month.

I am a completely different person now.

Okay, I know you are wondering…. The negative side effects:

I get a bout of “the stupids” from time to time. Usually right after taking it. I have trouble following a conversation. I found that if I take ibuprofen with my dose, it helps block this effect. Finally, a use for ibuprofen where it works!

Yep, that is it. That’s the only negative side effect. Done with that list.

Back to the neurologist:

I am considering finding a new neurologist because she didn’t want to listen to me when I told her I don’t have side effects to MMJ. She also looked up Trileptal because Miles and I both said we were still confused as to why I needed it when MMJ was working. She looked and the other one said it was for my “headaches”. Funny, because he said I needed it since I was not on anything for seizures. O.o

But for now she took me off medical marijuana for a long term EEG (check in at noon, leave at 5 pm) which happens on the 28th.

Yesterday would have been a take day (since I take it every other day) but I skipped it since I saw the doctor before my take time.

Today, I woke up hurting and with a mild angioedema attack.

My waist down to the soles of my feet are feeling numb-ish again. I barely made it to the bathroom earlier. When I sit in on position for about 5 minutes, my legs start going numb. I can’t really feel my feet.

My joints are killing me. My muscles feel like I lifted 300 pound weights and keep tensing up. So I won’t be doing anything until after the 28th. The boys went and got my walker out of storage.

I can’t straighten my back again. I started shaking from the pain. I am almost in tears from the pain. How the hell did I do it before?

My chest hurts again. I feel like an elephant is sitting on my chest. I feel like I am on the verge of panicking and screaming, partly from the pain.

I feel like my bones are breaking. I have sharp shooting pains from my joints. I don’t even want to move.

It already hurts too bad to cook anything again and my steamer died so I am at the mercy of my kids cooking (which is tasty cooking but I hate asking them to make food). I have no appetite today and I am so nauseous I could puke so I am guessing this won’t be a huge issue. Back to barely eating.

This better be worth it. And hopefully the Neuro-doc will act more like the first two times I saw her because I was horribly unimpressed this appointment. We will see how this goes.

Overall pain level lately: 2-4 depending on the day.

Overall pain level today: FUCKING SEVEN!

WordPress Changed, Trying Razors, and Physical Therapy!

WordPress Change!

I haven’t been in a great mood lately. Mostly sleepy and hurting pretty bad. That’s why I haven’t been on here much. But I do plan on getting on here more and typing on here and my other blog. Just a couple of days a week. I want to ease into it. When I logged on today, WordPress has changed! WOW! I kind of like it. It’s sleek and nice. Give me a minute while I admire the page.

Updated: Apparently that slick new layout works only when you start a new post from your “my blogs” page. I went to the dashboard to this blog and opened the post from there so I could finish it and it opened in the regular page. I am cool with both.

Trying Razors.

I was watching Philip DeFranco (link will open in a new window) and he always has some blurb about some product that he uses and then shares a link for you to check it out. If something looks interesting, I check it out. Well, today he had the link to a blade place called Dollar Shave Club. I have heard about them before but I decided to check them out for myself.

I ordered the $1 “Humble Twin” to try. It’s $2 shipping and handling which brings my 5 razors to $3. Considering that I live in an area where razors are expensive and the price keeps going up, I decided to try the Dollar Shave Club. I recently paid $11 for blades. And by “recently”, I mean like a year ago because I can’t afford $15 (the price now) for razor blades.  Continue reading